[New post] Orphan Disease Research: Overcoming Years of Industrywide Neglect

RHJ Producer posted: " Doctors diagnosed Patrick Girondi's son with thalassemia in 1992, declaring he'd die by age 14. Like most other rare conditions, treatments for thalassemia were slim to none. Dr. Stanley Nelson explains how orphan disease research has progressed " Radio Health Journal Orphan Disease Research: Overcoming Years of Industrywide Neglect RHJ Producer Jul 3 Doctors diagnosed Patrick Girondi's son with thalassemia in 1992, declaring he'd die by age 14. Like most other rare conditions, treatments for thalassemia were slim to none. Dr. Stanley Nelson explains how orphan disease research has progressed in the last few decades and why a cure isn't always the goal. Guest Information: Dr. Stanley Nelson, […] Read more of this post Comment Unsubscribe to no longer receive posts from Radio Health Journal. Change your email settings at manage subscriptions. Trouble clicking? Copy and paste this URL into your browser: https://radiohealthjournal.org/orphan-disease-research/ Powered by Jetpack